Giving hope to those affected
by secondary breast cancer
Research. Support. Education.
Giving hope to those affected
by secondary breast cancer
Date of Diagnosis:
August 2020
Current Treatment Line
Pabociclib
Letrozole
Denusomab
How does secondary breast cancer affect your life?
Tiredness is the worst but otherwise just being careful in todays climate
What advice would you give to someone newly diagnosed?
Live your life every day and rest when your body says so ... it's about living your best life
Has your treatment line changed since you completed SBC & Me last year?
I'm still on the same treatment i started on in august 2020 .. palbociclib 125mg, letrozole and Denosumab injections
How are you coping?
I'm doing great with my treatment, its keeping me stable and i'm still on the highest dose so there are options to lower my dose if needed
Do the side effects affect your life daily? If yes, please explain
Sometimes yes but generally no, I get very tired easily but if you rest when your body says so, you'll do well .... obviously you've to think of things that you wouldn't normally for instance my little grandson is going for his mmr this week and because it's a live vaccine I cant be near him for 10 days but it's for both our benefits and will be worth it
Have you found a routine that works for your everyday life? If yes, please explain
Yes, I follow my body if I'm having a good day I'll go out and about and if not I'l rest but I've taken up knitting again and am loving it and it makes me feel more "normal"
Do you feel anything is missed when it comes to living with secondary breast cancer? Medically or Socially
Medically here in Northern Ireland we don't have an SBC nurse available to us so that is being addressed at present.
Socially people expect you to be able to continue as normal because you look really well
Have you treated yourself to anything since your diagnosis? If yes, please explain
A campervan! I love it, my husband and I pack up even just for the day and go up the coast to sit and chill and have some "us" time
Has it changed your perspective on life? If yes, please explain
I always lived for the day anyway
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